Scattered pieces

I’m writing this entry from a hotel by the beach… Out one window is the view of a bay, out the other is a glimpse of the ocean…  It’s beautiful.

I wish my state of mind matched the beauty surrounding me, but it doesn’t.  Instead it’s a floating mess of past and present memories…  It’s a harsh reminder that no matter how far I run, the problems will follow me until I work them through.

I hate that.

I knew it was risky coming to the beach, but I didn’t realise the memories and issues it would throw at me.  A combination of being in a hotel; by a beach similar to the one where I grew up; and the psychiatric assessment on Tuesday, has opened old wounds.  To top it off, the free cable channels in the hotel are the Rugby ones… just typical!  Why couldn’t they be the kids, movies or arts channels… why????

The fall-out from the psychiatric assessment on Tuesday has been severe.  I made many mistakes, thereby giving ACC lots of ammunition to use as a way of apportioning away responsibility to other issues.  In fairly typical fashion, I’m beating myself up for it.

I won’t know the results of the assessment for several months.  The psychiatrist assured me that he would recommend that I continue to get ACC funded therapy.  But, I was honest about my level of dysfunction and self-injury, so ACC might decide in peer review that I need to be in the hospital system or forced into DBT.  Then there’s the issue of determining my level of impairment… this is a brutal system, and one that has been harsh for me in the past.  I’m expecting it to be just as harsh this time around…  This will have little to do with the assessing psychiatrist, and more to do with the peer reviewers at ACC.

The assessing psychiatrist understood DID, he really “got” it… One of the last questions he asked was how long we’d been talking, B had just come forward again, so thought it had just been a few minutes… it had been over an hour.  B then noticed that the sunlight had moved across the floor… she forgot to check the agreed upon marker of time before answering him…

One of the things we did to try and ease the stress of the assessment, was to produce a summary of our life.  It was harsh to see our SA experiences summarised in a dozen bullet points on half a page.  That summary was difficult to write… one line alone took 4 hours… we finally admitted in writing that the father abused us.  It is now on our ACC records.  That makes it official… scary… overwhelming… disgusting… shameful… ugly…

Sorry, I know this is disjointed…

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Now playing: Blindspott – Phlex
via FoxyTunes

Note: This entry may trigger due to issues around suicide being discussed.

I’ve been fairly open about my levels of suicidal ideation on this blog over time. But the last week or so, I’ve been dancing around the subject. The reason why… on the 2nd and 3rd of August I tried to commit suicide.

I’m still trying to make sense of the attempts, and the triggers which precipitated them.

The main things I remember about Monday, are that I didn’t work my usual late shift, and that I was very tired… very, very tired. So tired, that it made perfect sense to come home, empty a pill bottle into my hand and swallow them down with a caffeine drink.

I vividly remember looking at the pile of pills in my hand, and thinking… “This will help me sleep”.

This terminology is significant… “This will help me sleep”. Usually, my suicidal ideation and intent is termed “running away”, so I wonder if the change in phrasing was an indication that different ones were driving the attempt, or whether I was just really tired?

In the past, whenever there has been even a suicidal gesture, a protector has come forward and immediately called for help. But not this time. This time, I climbed into bed and waited for sleep. That was at about 6pm. The next thing I remember, is waking in a panic at 2.45. I wasn’t panicking about the pills that were now well absorbed into my system…  Oh no, I was panicking because I wasn’t sure if it was morning or night, and I was worried about missing work!

The details are fuzzy, but somehow we ended up in ER. ER’s always seem so bright… so well lit… super bright… I know this is a medical necessity, but it’s also about our fears. We hate hospitals. We feel ourselves get smaller, younger and more tongue-tied in hospitals… It’s hard to hear what people are asking of us, and we become more robotic.

As an indication that there was still come cognitive thinking happening, we’d remembered to bring our iPhone with us. Hours of playing Boost 3D, Euchre, Hell’s Kitchen… Anything to try to keep calm! Then the unspeakable happened, the iPhone battery ran out… This tipped the scales back to crazy.

• We removed the lure ourselves and went to the nurses station, asking to leave. They took us through to the observation lounge instead. Yay… power points for recharging the iPhone :)
• WPT came and visited us in the ER, and we brushed him off… told him we were fine and not to worry about us…
• When we were assessed by the psychiatric team… I say “assessed”, but to the system, it felt like a grilling.  They asked about family relationships, abuse history etc.
• By the end of the assessment, angry protectors were up front and they ripped up the discharge papers as we walked away from the nurses station.

Yes, we were released with no follow-up or safety options mentioned.

When we got home, there was still the need to sleep. I think one of us called the crisis team, but gave a fake name… I remember the crisis person yelling at us that they were sending the Police around. This was the wrong threat to make, as it gave the protectors hope that help was on the way. They became less vigilant…

We sat down at the table with enough pills for a fatal overdose. It was very mechanical and quick. Again, there was a need to have enough pills to “get some sleep”. Once these were consumed, we went to bed. Again, a panicked waking a few hours later and a ride in an ambulance.

This time it was serious… I knew that because of the number of nurses around. I remember looking over when they took my blood pressure, and saying how good it was (53/45). Usually my blood pressure goes through the roof in hospitals due to anxiety (the next day it was 195/146). I asked if I could go home, because my blood pressure was so good, and it was all just a silly mistake…

I remember the nurses being nice.
I remember them wheeling me down corridors to a ward.
I remember a nurse sitting in a chair at the end of my bed all night.

We called the mother, asking her to come up because we needed help. Our cat needed food…

We were kept in for a couple of days, and again had a psychiatric assessment, this one was much more gentle. They asked about safety and stressors. They gave us options – they suggested hospitalisation, or respite. But the psychiatric ward was fairly full, and the respite place would be different to the one I’ve been to previously. Instead, we were released to the mother (a former nurse) at home.

The thing that blew me away about the medical ward, was their compassion and understanding. I was there for an overdose, but they didn’t judge. They had almost no knowledge of mental health issues (I had to tell them how to spell “dissociative”), but they were respectful of me as an individual…

It’s now over a week since the attempts, and I’m still on shaky ground. Last night, R was very present. I know it was him, because I could clearly see what he wanted – to be wearing just jeans, standing in the middle of the road, in the pouring rain, arms up, yelling (in pain, release, anger???).

I’m very aware that I’m still walking along the cliff edge. One little push will send me over.

It’s times like this that I realise how amazing the people around me can be… WPT came to see me in hospital (twice); while my blog friends have been a steady, calm voice of reason when I needed it desperately… thank you!

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Now playing: The Freshman – The Verve Pipe
via FoxyTunes

You shall not pass!
You shall not know.
You will never know.
It will destroy you to know.
I will destroy you, before the secrets are told.

This message has been driving my existence for the last week (month?). D. One from my internal Basement has drawn, what can only be described as, battle lines. There’s no give, little communication and no trust. She’s said several times that she hates the rest of us, and has apparently sworn at Allison – not something that I would do.

The problem… We’re getting closer to her secrets, or the secrets in The Basement. This has been deemed as too dangerous for the system by D. One. This is a Polyvore set done last night to prove the point.

What surprises me, is that it looks rather tame in comparison to some of the other works that have involved her (for example D. One). But, it more clearly shows the dissociative wall she is protecting.

As an aside, she was associated with fire and a serpent in the last set, but now it’s birds and trees?

Last week, it became obvious what she will do to protect that wall. It wasn’t pleasant.

As a result, the mother is now staying with us. Those of you familiar with this blog, will know that the mother has a tendency to grate, annoy and trigger different parts of the system. She was psychologically abusive and neglectful during my childhood, and parts felt betrayed and hurt by her. Saying that, there are parts of the system who love, cherish and want to have a relationship with her. At the moment, for our safety, she is being tolerated by us all.

I keep on wondering what all of this activity by D. One means… Reflection is my key to healing and understanding. But yet, I find it almost impossible to reflect on the actions of the past week. I find it difficult to put them into context. If D. One was so stead fast in her rules of no more secrets being shared, why was a young one allowed to talk to Allison on Friday? It doesn’t make sense. Admittedly, there were no secrets shared, it was a very narrow flashback being described, but I’m struggling to make sense of it all.

One good thing about the mother coming up, is that she has again validated some memories, either through mentioning suspicions, or by describing vehicles that were either used, or around during my childhood. I know this is a double edged sword – if she had suspicions, why didn’t she act to protect us? Possibly this goes back to what Paul was discussing when he gave a brief overview of how societies attitude towards CSA has changed over time? Possibly, it’s because we were a white, middle class family? Possibly, it’s because the mother is a nurse who was clinical, rather than emotional and nurturing? All I know, is that it hurts that there were seemingly obvious signs and suspicions, which were ignored. I also know, that this is a similar story for thousands of other survivors.

So where to from here? Well, in just over two weeks, I have an ACC assessment. I’ve been assured by people I trust, that the assessing psychiatrist is good. But, it means describing my dysfunction, past and struggles with someone new. The results of this assessment will determine whether we still will receive ACC funded therapy, or not. We’re expecting to get our funding withdrawn – either because we haven’t shown enough progress, or because ACC will consider us to be better off in the public health system.

This assessment is what is destabilising the system. This is what is ramping up D. One’s activities… The difficult part, is that even once the assessment is over, it could take months for the results to come through. I’m not sure whether the system can cope with that sort of delay.

On a positive note… Two of my favourite blog distractions at the moment are DogHouse Diaries and Message with a bottle. As a warning, the first is a sarcastically funny take on relationships, and the second is a photo diary by a stay at home father of post-it-notes to, and about his son. I add the warning, as I know many of us struggle with fertility issues…

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Now playing: P!nk – Trouble
via FoxyTunes

I’m stuck… Stuck in a hellish limbo.  I’m derealised, dissociated and generally out of touch with reality.  Memories are flicking through my brain, stinging like needles.  I’m so out of touch.

This is the cause…

Stuck in a memory, and can’t get out.  No matter how much I try.  Half the problem is that the memory won’t form so I can work it through.  Just little fragments darting through my mind.

Want to run.  Want to hide.  Want to…?

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Now playing: Natalie Merchant – My skin
via FoxyTunes

The activity for this months Expressive Arts Carnival is to:

Use any visual means (e.g., drawing, painting, photography) to represent, in an abstract way, your experience of all or part of your internal world. The key to the activity is to focus on an abstract representation. The reason for this focus is that it helps us to describe our experiences in a way that is not so familiar to us.

First off, I’m not good with abstract thinking or art, let alone putting the two together; so this activity has proven to be a bit of a challenge.

Saying that, here are our  attempts to represent what our internal world looks like…

Internal World: Part I

This one was heavily influenced by M.  It’s a very structured view, and I think comes from her place of being a little apart from the rest of us.  I think it’s possibly more of an abstract system map, rather than a representation of our inner world.

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Internal World: Part II

Well, our internal world according to Aimee and K (with help from Sophie)… They like the baby moose playing, and the mother moose always watching to make sure nothing will hurt them :)

I’m not sure if this is really a representation of our internal world for a majority of us, but I think it’s accurate for these two young ones… or how they’d like it to be???  They also love the clip, so wanted an excuse to put it on the blog…

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Internal World: Part III

In the shadows, waiting.

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Internal World: Part IV

Which leads to the final representation… the one that all of us agree to some extent represents our internal world, or a very important part of it…

Shadows…  The lower left corner represents areas which are in total darkness, while the upper right corner represents areas which are flooded with light. These two extremes are linked by varying degrees of shadow intensity.

This was an interesting exercise to do… Thank you Paul for providing the prompts.

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Now playing: Five For Fighting – 100 Years
via FoxyTunes

The last two days have been kind of rough.

Heading into Thursday, I was feeling good and had managed to pull myself onto some sort of steady ground.  That all fell apart late Thursday afternoon, when I got an email from the other team leader, calling into question the quality of my work.  That email sent me plunging back into self-doubt, self-hatred and all the other associated negative thinking.  My cynical friend told me to forget it; but it was such a back-stabbing insult that I couldn’t brush it off.  To make it worse, my own team leader wasn’t around to reality check the content of the email, and I didn’t want to run to the manager about it.  This spun me out to the point where I knew I wasn’t safe to drive home.  I stayed on at work for a couple of hours, before driving home and losing most of the evening to the dissociation.

Then, on Friday morning during my drive to work, we went past a “hurt” cat in the middle of the road.  I always dread this sort of thing; not only does it stir up the system because an innocent animal has been hurt, but it’s a trigger for some of the younger ones.  Like a deer caught in headlights, we can never look away… we started reciting “it’s just a jumper that fell out of a car”, hoping that this will change how we see the cat… it doesn’t.  This means we now have adult parts smarting from the insult to our work, and young ones upset that an innocent cat has been hurt.

So we’re now driving down the road reciting out loud “it’s just hurt, it’s ok, it’ll get up soon and the people who love it will come get it and take care of it”.  There was also a promise that we wouldn’t drive home that way, just in case it hadn’t been moved.

Work on Friday is mostly a blank… I know we had a morning tea for the two new people, and that the manager made a triple layer banana and pineapple cake (which did a rather spectacular topple over during the cutting process).  I also know I played around with the iPhone app kooaba, as we’re looking at new ways to try to deliver information through technology such as QR codes and visual recognition apps.  This was fun because we were going around the library, taking random photos of books, CDs and DVDs to see what information kooaba would return.

Then it came to the drive home… all the way up the street where we should have turned off to avoid going by the stretch of road where the cat had been hurt, we were consciously thinking of turning.  Then there was this little mind fit, and we were suddenly past the turn off.  I could hear the panic, but there was also this firm voice telling me to stop being so silly, that there will be nothing there, and it will all be fine.

Thankfully the cat was no longer there, but that didn’t matter, the panic had set in.  We were switching all over the place and I could feel our throat closing up.  Little Michelle came forward full force, meaning that we couldn’t really drive, talk and only barely functioned enough to get home in one piece.  Because we live in a high fenced section, no one saw us getting out of the car shaking like a leaf and stuttering about it hurting.

We got inside, fed Winnie, turned on all the lights, curled up in the corner of the lounge and tried to ease the shaking.  I had no real sense of what was happening, but there were obviously body memories.  The throat was closed off, and no matter how hard I tried, I could barely stutter.  I managed to take some anxiety medication and send the following email to Allison…

turn all the lights on an hide
turn all the lights on an hide
turn all the lights on an hide
turn all the lights on an hide
turn all the lights on an hide
turn all the lights on an hide
turn all the lights on an hide

hide got to hide
he’ll find us

I think we finally went to bed at about 8am (it was naturally light by then) and slept for a couple of hours.

Saturday had been good… we’d talked to a friend and took some pictures of the stuffed toy we got for the young ones as their reward for going through the divorce proceedings…

This made me think that tonight was going to be easier… the fear seemed to have eased.  But it’s now 1am Sunday and all the lights are on again.  Little Michelle is ok as long as all the lights are on.  We’re also ok as long as we don’t even think about going to bed.

One of the big problems with this scenario, is that it opens us up to further dissociation and self injury.  We’re so switchy and shaky…

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Now playing: Missy Higgins – Where I Stood
via FoxyTunes

I learned from an early age that my family needed to be protected.  In my childlike way, I saw them as being unable to handle the secrets I held, or even to be able to deal with daily problems.  I saw the family around me, as being a swirling mass of chaos, and the only way to bring some control and calm to the situation, was for me to be a silent rock.

While this sounds very egocentric, it meshes with some of the basic principles of childhood development.  Dunn (1991, as cited in Claiborne & Drewery, 2010, p. 157), discuss how children as young as two attempt to comfort their mother when they see her distressed.  While Lewis (2002, as cited in Santrock, 2007, p. 340), talk about the development of shame and guilt for not meeting societal expectations in children as young as two and a half.  So it makes developmental sense, that by the time I was first abused at the age of three (nearly four), I could understand (in a childlike way) the implications of telling.  I could grasp the idea that it might either hurt someone else, or bring shame on myself for not meeting my mothers expectations – after all I was told at the event that it was “bad”, “dirty”, “wrong” and “naughty”… all very emotive words to a sensitive child.

Reading the literature on dysfunctional families, it also becomes clear that the need to protect my family meant that I lost sense of appropriate boundaries (Kerig, 2005).  It meant that I became enmeshed in the problems of some of my family (father, sister and one of my brothers) and held other members of my family quite distant from myself (mother and other brother).  Throughout the family, there was almost no boundaries where I was concerned.  My other siblings were able to create some sense of boundaries, but I seemed unable to do so.  This is possibly because of the age gap between us  – there is a five year age gap between myself and the next oldest child, but only four years difference between my other siblings combined.  It could also be because I was a difficult baby/child and I didn’t emotionally attach securely to anyone, with the associated developmental impact (Claiborne & Drewery, 2010, p. 49-51).

At this point, the intellectual part of me is happy with the theory as it helps to explain why we got where we did… the cynical part of me notes that we never had a chance… while the emotional part is screaming in pain…

So what does all this theory mean?  On one level, it helps to explain why we ended up in a dysfunctional family and were an easy target for abuse… we had no concept of what an appropriate boundary was; we were used to protecting others; and we didn’t really understand that it was wrong, because we didn’t understand where we ended and the rest of the world began.  On another level, there’s pain… total and utter pain… it doesn’t matter why it happened, it happened and it hurt.

In the midst of writing this post, I’ve seen the work place therapist.  In that one hour “talk” we did a sociogram of three people – my neighbour, the mother and sister.  It was incredible and awful…  On the floor we placed whiteboard magnets for each person in relation to myself…

First, was my neighbour, who was placed about 5cm from my marker… she was safety, freedom and acceptance.  But she was also shame and pain… I once overheard my neighbour, the mother, the sister and my neighbours daughter discussing how good it was that I wasn’t around because I was so annoying.  She was the safest thing I had outside of the teachers at school.

Second to be placed, was a marker for the mother, who was about 15cm away from my marker… she was not to be trusted, to be protected, consumed with the problems of my sister and joked about me being the mistake at the end.

Third to be placed, was my sister’s marker… this is where the lack of boundaries really showed… I told the work place therapist that she should be placed on the other side of the room, and on top of my marker.  There was nothing in-between, she was either invading my space or ignoring me.  She controlled many aspects of my life.  We shared a room for many years and she invaded my space so often, in so many ways.

This seemingly simple task brought up so much… W filled in the rest of the memory surrounding what happened after we overheard the discussion about us being so annoying – we got down off the fence and went inside the house to be hurt… We realised how young we dissociated, as we remembered getting a hug from a teacher for correcting a story; but we were depersonalised at the time, as we were so terrified that we hadn’t corrected the story “properly”.

Sophie cried… W was tough… Little Michelle stuttered…

Our work place therapist kept bringing us back to the emotions…

It was difficult, but not overwhelming.

What does all of this mean?  Well, for once I can understand the theory and associate some of the emotions with it.  Yes, I parented/protected those around me… I looked after my family’s needs before my own, I kept the secrets, all the while learning to cope and adapt through the gift/curse of dissociation.  I failed to learn and understand what appropriate boundaries were – physically, sexually, psychologically and emotionally.  I learned to lock away my emotions, and although these emotions hurt to look at and experience, they won’t destroy me – unless I let them (thank you to Meredith for today’s reminder regarding the truth of this statement).

My work place therapist said today that I was a strong child… Right now, that statement is enough for me to believe that I can heal and grow beyond the confined world I find myself in.

References

Claiborne, L., & Drewery, W. (2010). Human development: Family, place, culture. North Ryde, New South Wales, Australia: McGraw-Hill Australia.

Kerig, P. (2005). Revisiting the construct of boundary dissolution: A multidimensional perspective. Journal of Emotional Abuse 5(2/3), 5-42. doi: 10.1300/J135v05n02•02

Santrock, J. (2007). Child development (11th ed.). Boston: McGraw-Hill.

So, long time no posting…  I wish I could report some wondrous reason for my absence, but unfortunately not.  The only reason is pure dysfunction.  The reason for the dysfunction are my lessons for the week…

Lesson 1: Remember, listen and pay attention

I’m often reminded of the ripple effect any incident can have in a dissociative system.  Something that doesn’t even register as a ripple to you, can be tidal wave to another part of the system.  So when I briefly posted an entry on this blog that contained the words “good girl”, I had no idea what the consequences would be.  I didn’t sense any real warnings about the meditation when I read the original entry.  But then, I don’t think I was really listening and paying attention to what was happening internally.  I was thinking of sharing what I thought was a valuable resource with others – librarian mode in full flight.

The first hint that things weren’t right, was a message from S:
“I’m no ones good little girl”

Once I saw this message, I edited the entry to something I thought was safer. Ellie tried to reassure S -
Ellie: “it’s been changed”
S: “too late… pay the consequences”
Ellie: “it’s been removed, no need for consequences”

The thing is, I should have known not to use that phrase – it was listed in one of the original trigger inventories that I did early in my healing journey.  But I was arrogant, careless and disrespectful.  I was thinking of sharing a resource, more than I was thinking of the ones who carry the wounds.  There were consequences to using that phrase, and it’s impossible to blame her.  I trampled all over S and her triggers, so why should I expect niceties in return?

Yes, it would have been great if S could have dealt with the situation differently.  But, it also would have been great if I’d thought about what I was doing.

Did I really pay attention inside? No.
Did I think about the phrases I was reading and using? No.
Was I being a self-important pompous twit by finding something that others might find useful? Yes.

I was thinking of myself more than the system.  No wonder they don’t trust me.

Lesson 2: Be responsible for your own safety

Yes, the consequences of my actions meant that S lashed out.  The flashbacks were horrific and all consuming. This allowed the ones who are dangerous to come forward and, for want of a better word, play with the body.  But before we reached this point, I had the opportunity to ask for help from Allison and the crisis team.  That would have been the sensible thing to do, but what did I do instead?  Basically, I set Allison up for failure.  I was unable to say the words “I need help”.  Instead I buried the message in emails from M and the young ones tried to tell how scary it was within therapy.  It wasn’t surprising that Allison couldn’t work out how bad things were.  But her inability to read all the messages that seemed obvious to us, meant that she had failed.  So after therapy on Monday there was a dangerous incident that meant we ended up in respite care for two nights.

The truly sad thing, is that even after the incident, I wasn’t able to communicate to the crisis team that I was still in danger.  Both Sophie and M were telling the team that we were in danger, but also didn’t want to cause a fuss, so were going along with their plans to send us home.  When it became obvious that this was going to happen, a very restrained Frank came forward and indicated how unstable we were.  At least some part of me was willing to step up and protect us.

So this is what I’ve indicated to Allison that we need to work on immediately, my inability to communicate the level of danger I’m in.  I need to know how to read the signs within the system and communicate it clearly.  I know I’m hampered from this free communication because so many of the young ones are triggered by hospitals, and our fear is that if we are honest about how bad things are, we’ll end up there.

If I’d been honest today, I probably shouldn’t have been released from respite.  But respite was different this time.  I was in the same place, but the carer in charge for the week was different, as were the mix of the clients.  This threw the dynamics off to the point where it didn’t feel safe.  It felt like my house growing up; rather than the healthy, vibrant place that the other carer made it.

I know I’m not out of danger yet.  I’m seeing the crisis psychiatrist today, so I’ll get another chance at trying to be honest about my level of danger and establishing what options are available to me.  I’m almost resigned to a hospital stay… some think this would be a good idea, especially in the secure ward where we can release some of the pent up emotion in a safe environment.

So at the moment I feel like a complete and utter failure.  I put the system under more stress at an already stressful time, and I didn’t take adequate steps to protect us once the damage had been done…  Yup, a failure.

Note: Please be aware that I am getting support, I’m not putting this out there and expecting readers to save me… although donations gratefully accepted (especially therapy vouchers) – you know, just saying :)