Scattered pieces

Please note that this may trigger.

It feels like I’m falling into a black hole…

Over the weekend, the dissociative fog was still hanging over me… everything very detached and unreal… Then, in acts of what I can only consider self-sabotage and self-injury, I sought out ways to break through the fog.  It wasn’t smart, it wasn’t pretty, and if it hadn’t been for a good friend, it probably would have led to some seriously stupid actions on my part.

It started off in the morning by going to the shops and buying some L&P, Salt and Vinegar chips and lollie cake… otherwise known as food triggers from my childhood.  I didn’t consciously buy these things, but they were amongst my groceries when I got home.  This stirred things up internally, but I didn’t really think much of it… the dissociative fog was still keeping everything very separate and numb.

Then, in actions that were so stupid, they’re ridiculous… I read an article about ACC’s mishandling of a clients psychological reports… I watched a 20/20 special on CSA… then one on a religious sect in America… then, to top it off, I read several blogs that talked about either consensual sex, or CSA…

Stupid, totally stupid…  That whole concept of telling others to take care and look after themselves… totally lost on me.

After reading a blog about consensual sex, I lost it…  Flashbacks came through like a freight train…  Sounds filled my head… and the smells… the smells… stomach churning, repulsive smells.

I have no idea which young one it was who carried the memories, but she was hurting so much…  The blind panic, the inability to breathe, the need to run…  The overwhelming confusion, the pain…

Too much… just too much.

What does my head in about the memories, is why didn’t I say anything about what was happening?  Why wasn’t my behaviour picked up as being odd by my teachers or doctors?  Was I that good at hiding it all?  Maybe I was, I don’t know… Maybe being part of a white middle class family meant that those sorts of things weren’t meant to happen to me?

Yesterday I remembered a new piece in the puzzle as to why I didn’t tell…  At the rugby club where the father was manager, they had regular raffles.  Each of those raffles had to be drawn in the presence of the Police.  Each time there was a draw, the father used to take me to the Police Station.  I remember that the Police used to joke with me that if I was bad, they’d have to lock me up.  They showed me the cells.  Put me in them and closed the door, so I’d know what it was like.  I know they did this in jest and teasing.  It wasn’t meant to be abusive.  The always laughed and teased the blonde haired girl tagging along with her father.

This is why I believed the implied threats that I would be locked up if I ever told.  That I wouldn’t be believed.  That I was the bad one in the equation…

We went into see Allison today, hoping to talk about all of this.  But we talked about a safety contract instead.  I know safety is important, but I’m scared… I could feel the resentment and resistance to the idea of a contract and our behaviour being “controlled” through reward and consequences.  I worry about what the backlash against the contract is going to be.  Allison says she’s expecting a reaction… which is fine for her, she won’t be the one experiencing it.

I feel like an open wound…  I feel like this…  If you close your eyes and listen, it takes you places…

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Now playing: Wilhelm Kempff plays Beethoven’s Moonlight Sonata
via FoxyTunes

I’m stuck… Stuck in a hellish limbo.  I’m derealised, dissociated and generally out of touch with reality.  Memories are flicking through my brain, stinging like needles.  I’m so out of touch.

This is the cause…

Stuck in a memory, and can’t get out.  No matter how much I try.  Half the problem is that the memory won’t form so I can work it through.  Just little fragments darting through my mind.

Want to run.  Want to hide.  Want to…?

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Now playing: Natalie Merchant – My skin
via FoxyTunes

The last two days have been kind of rough.

Heading into Thursday, I was feeling good and had managed to pull myself onto some sort of steady ground.  That all fell apart late Thursday afternoon, when I got an email from the other team leader, calling into question the quality of my work.  That email sent me plunging back into self-doubt, self-hatred and all the other associated negative thinking.  My cynical friend told me to forget it; but it was such a back-stabbing insult that I couldn’t brush it off.  To make it worse, my own team leader wasn’t around to reality check the content of the email, and I didn’t want to run to the manager about it.  This spun me out to the point where I knew I wasn’t safe to drive home.  I stayed on at work for a couple of hours, before driving home and losing most of the evening to the dissociation.

Then, on Friday morning during my drive to work, we went past a “hurt” cat in the middle of the road.  I always dread this sort of thing; not only does it stir up the system because an innocent animal has been hurt, but it’s a trigger for some of the younger ones.  Like a deer caught in headlights, we can never look away… we started reciting “it’s just a jumper that fell out of a car”, hoping that this will change how we see the cat… it doesn’t.  This means we now have adult parts smarting from the insult to our work, and young ones upset that an innocent cat has been hurt.

So we’re now driving down the road reciting out loud “it’s just hurt, it’s ok, it’ll get up soon and the people who love it will come get it and take care of it”.  There was also a promise that we wouldn’t drive home that way, just in case it hadn’t been moved.

Work on Friday is mostly a blank… I know we had a morning tea for the two new people, and that the manager made a triple layer banana and pineapple cake (which did a rather spectacular topple over during the cutting process).  I also know I played around with the iPhone app kooaba, as we’re looking at new ways to try to deliver information through technology such as QR codes and visual recognition apps.  This was fun because we were going around the library, taking random photos of books, CDs and DVDs to see what information kooaba would return.

Then it came to the drive home… all the way up the street where we should have turned off to avoid going by the stretch of road where the cat had been hurt, we were consciously thinking of turning.  Then there was this little mind fit, and we were suddenly past the turn off.  I could hear the panic, but there was also this firm voice telling me to stop being so silly, that there will be nothing there, and it will all be fine.

Thankfully the cat was no longer there, but that didn’t matter, the panic had set in.  We were switching all over the place and I could feel our throat closing up.  Little Michelle came forward full force, meaning that we couldn’t really drive, talk and only barely functioned enough to get home in one piece.  Because we live in a high fenced section, no one saw us getting out of the car shaking like a leaf and stuttering about it hurting.

We got inside, fed Winnie, turned on all the lights, curled up in the corner of the lounge and tried to ease the shaking.  I had no real sense of what was happening, but there were obviously body memories.  The throat was closed off, and no matter how hard I tried, I could barely stutter.  I managed to take some anxiety medication and send the following email to Allison…

turn all the lights on an hide
turn all the lights on an hide
turn all the lights on an hide
turn all the lights on an hide
turn all the lights on an hide
turn all the lights on an hide
turn all the lights on an hide

hide got to hide
he’ll find us

I think we finally went to bed at about 8am (it was naturally light by then) and slept for a couple of hours.

Saturday had been good… we’d talked to a friend and took some pictures of the stuffed toy we got for the young ones as their reward for going through the divorce proceedings…

This made me think that tonight was going to be easier… the fear seemed to have eased.  But it’s now 1am Sunday and all the lights are on again.  Little Michelle is ok as long as all the lights are on.  We’re also ok as long as we don’t even think about going to bed.

One of the big problems with this scenario, is that it opens us up to further dissociation and self injury.  We’re so switchy and shaky…

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Now playing: Missy Higgins – Where I Stood
via FoxyTunes

I learned from an early age that my family needed to be protected.  In my childlike way, I saw them as being unable to handle the secrets I held, or even to be able to deal with daily problems.  I saw the family around me, as being a swirling mass of chaos, and the only way to bring some control and calm to the situation, was for me to be a silent rock.

While this sounds very egocentric, it meshes with some of the basic principles of childhood development.  Dunn (1991, as cited in Claiborne & Drewery, 2010, p. 157), discuss how children as young as two attempt to comfort their mother when they see her distressed.  While Lewis (2002, as cited in Santrock, 2007, p. 340), talk about the development of shame and guilt for not meeting societal expectations in children as young as two and a half.  So it makes developmental sense, that by the time I was first abused at the age of three (nearly four), I could understand (in a childlike way) the implications of telling.  I could grasp the idea that it might either hurt someone else, or bring shame on myself for not meeting my mothers expectations – after all I was told at the event that it was “bad”, “dirty”, “wrong” and “naughty”… all very emotive words to a sensitive child.

Reading the literature on dysfunctional families, it also becomes clear that the need to protect my family meant that I lost sense of appropriate boundaries (Kerig, 2005).  It meant that I became enmeshed in the problems of some of my family (father, sister and one of my brothers) and held other members of my family quite distant from myself (mother and other brother).  Throughout the family, there was almost no boundaries where I was concerned.  My other siblings were able to create some sense of boundaries, but I seemed unable to do so.  This is possibly because of the age gap between us  – there is a five year age gap between myself and the next oldest child, but only four years difference between my other siblings combined.  It could also be because I was a difficult baby/child and I didn’t emotionally attach securely to anyone, with the associated developmental impact (Claiborne & Drewery, 2010, p. 49-51).

At this point, the intellectual part of me is happy with the theory as it helps to explain why we got where we did… the cynical part of me notes that we never had a chance… while the emotional part is screaming in pain…

So what does all this theory mean?  On one level, it helps to explain why we ended up in a dysfunctional family and were an easy target for abuse… we had no concept of what an appropriate boundary was; we were used to protecting others; and we didn’t really understand that it was wrong, because we didn’t understand where we ended and the rest of the world began.  On another level, there’s pain… total and utter pain… it doesn’t matter why it happened, it happened and it hurt.

In the midst of writing this post, I’ve seen the work place therapist.  In that one hour “talk” we did a sociogram of three people – my neighbour, the mother and sister.  It was incredible and awful…  On the floor we placed whiteboard magnets for each person in relation to myself…

First, was my neighbour, who was placed about 5cm from my marker… she was safety, freedom and acceptance.  But she was also shame and pain… I once overheard my neighbour, the mother, the sister and my neighbours daughter discussing how good it was that I wasn’t around because I was so annoying.  She was the safest thing I had outside of the teachers at school.

Second to be placed, was a marker for the mother, who was about 15cm away from my marker… she was not to be trusted, to be protected, consumed with the problems of my sister and joked about me being the mistake at the end.

Third to be placed, was my sister’s marker… this is where the lack of boundaries really showed… I told the work place therapist that she should be placed on the other side of the room, and on top of my marker.  There was nothing in-between, she was either invading my space or ignoring me.  She controlled many aspects of my life.  We shared a room for many years and she invaded my space so often, in so many ways.

This seemingly simple task brought up so much… W filled in the rest of the memory surrounding what happened after we overheard the discussion about us being so annoying – we got down off the fence and went inside the house to be hurt… We realised how young we dissociated, as we remembered getting a hug from a teacher for correcting a story; but we were depersonalised at the time, as we were so terrified that we hadn’t corrected the story “properly”.

Sophie cried… W was tough… Little Michelle stuttered…

Our work place therapist kept bringing us back to the emotions…

It was difficult, but not overwhelming.

What does all of this mean?  Well, for once I can understand the theory and associate some of the emotions with it.  Yes, I parented/protected those around me… I looked after my family’s needs before my own, I kept the secrets, all the while learning to cope and adapt through the gift/curse of dissociation.  I failed to learn and understand what appropriate boundaries were – physically, sexually, psychologically and emotionally.  I learned to lock away my emotions, and although these emotions hurt to look at and experience, they won’t destroy me – unless I let them (thank you to Meredith for today’s reminder regarding the truth of this statement).

My work place therapist said today that I was a strong child… Right now, that statement is enough for me to believe that I can heal and grow beyond the confined world I find myself in.

References

Claiborne, L., & Drewery, W. (2010). Human development: Family, place, culture. North Ryde, New South Wales, Australia: McGraw-Hill Australia.

Kerig, P. (2005). Revisiting the construct of boundary dissolution: A multidimensional perspective. Journal of Emotional Abuse 5(2/3), 5-42. doi: 10.1300/J135v05n02•02

Santrock, J. (2007). Child development (11th ed.). Boston: McGraw-Hill.

I’m not good with boundaries… I know this. When the dissociation and switching increases in frequency, my scant understanding of appropriate boundaries goes out the window. This was (yet again) evident earlier this week, when Matthew Branton asked (a perfectly legitimate question) about having a place within the blog where new readers could get an understanding of my background and the experiences that brought me to this place in my healing. This question, in conjunction with reading Matthew’s account of his past (Dissociative Identity Disorder and me), and Faith Allen’s series of posts about her past on Blooming Lotus; meant that a part of me took this question very literally… Suddenly there were over a 1000 words on a new page within the blog which described my family and what I have been told about my childhood up until I was a toddler. There was a real drive to write this history out, but that need came from a part of me that didn’t understand the implications for the rest of the system. They are a part of me that always obeys a suggestion or request without question. The ultimate people pleaser.

You’ll see that the page is no longer on the blog, I’ve hidden it. I realise that I do need to write out my history, but I need to write it out for Allison’s eyes only. It would be too easy to piece together my history, and find out who I am in real life from the detailed account that was being generated… that just can’t happen! I would risk losing my career and being labelled with all of the negative stereotypes that those with mental health issues carry. I hate the stereotypes and misinformation about those who deal with mental health issues every day, but I’m not in a strong enough place to fight it. Also, to be blunt, librarians are a bunch of close minded, gossiping old biddies… if they discovered that I have DID, I would never get another job within New Zealand.

After talking to a friend, I realised that I can still write a summary here about my past, but I don’t have to go into so much detail. This is where I need to learn about the appropriate boundary. How much do readers of this blog really need to know about me? Does it matter that I’m the youngest child? Does it matter that I have no memory of what any of my family looked like as I was growing up? These are the questions that I need to ask myself, and take my time answering. So, I will put up a new page that carries a summary of my experiences, but it will take me some time to come to an internal agreement as to what I can reveal safely.

The other boundary issue I’ve been facing this week, is the re-decorating of my rented house. I knew that the landlords were going to re-decorate the house sometime soon, but on Monday I got a call from a painter saying he’d be starting Tuesday; so, could I leave a key to the house under the mat to allow his team access to the house. Now, I know I should be grateful that the landlords are doing the work – the wallpaper was peeling. BUT, STRANGE MEN WERE GOING TO BE IN MY HOUSE WHILE I WASN’T THERE. They were going to be moving my stuff. They were going to be walking in my house… the house that I worked so hard to try and make feel safe. It caused havoc within the system.

On Tuesday when we came home, the wallpaper had been stripped from the walls, but the house wasn’t too messy. We could cope with a great amount of deep breathing and locking all the windows and doors – then re-checking them every hour or so. But on Wednesday when we came home, they had painted the woodwork, which caused a huge mess. They’d been careless with our possessions – our cats food and water bowl were spoiled with paint dust, there was paint on our wooden dresser and they’d carelessly knocked over our things in the bathroom. We’d also had to do some teaching that day, so it was all too much… What I’m really proud of though, is that we didn’t self injure! We were in a mess, but One remembered Paul’s oil pastel artwork, so found our old pastels and got us to draw instead of injure. This is what we drew…

Swirl

Black Red

I’m not really aware of what happened as we were drawing these, or even what they mean.  But, I know that there was a great deal of energy used on the second one.

We were hoping that they would be finished the redecorating on Friday, but it looks like they didn’t do any work at all that day. This, in combination with a rough day at work and being the anniversary of when Sophie and R were born due to an abusive event in the past; meant that last night there was a total loss of control. I only came back to any sort of awareness late Saturday morning.

What’s interesting about this latest event, is that I’m being told “You won’t tell that b@t@h Allison about this.” I’m not sure if this is a statement of fact, a challenge, or a derisive comment on my inability to talk about the tough issues in therapy. But I know that this time, I do need to tell Allison… I need to get outside help for the dangerous dysfunction. So, that’s what this weeks therapy is going to be about… wish me luck!

This latest round of confusion and self-injury, has made me aware of how little internal communication I now have. The dissociation has ramped up several notches, and my old skills have been lost (or maybe misplaced). Trust has gone, and it feels like I’m starting from scratch again…  For some reason I was reminded of this old Telecom ad… Maybe it’s the message about communication being the first step… and maybe about communication starting with the children/young ones…  Or, as is now being suggested internally, maybe I’m just a sap :)

Friends

Oh, and on a positive note… I’m the lucky “god-fearing” person chosen by Miss Linda to help her money launder retrieve $22 million from her fathers estate. The poor man was poisoned by his business colleagues (nasty men), and her only hope to get the money out of the Ivory Coast, is through me. I’ll be the lucky recipient of 15% of this sum, so it’s all good… my money worries are over! This is also a much better offer than last weeks one from Mr Philip, a lawyer from England… Strange how a lawyer would track me down as a long lost relative, when I never use my real name in any of my email addresses… but then, he’s a lawyer with wicked mad skills apparently ;)

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Now playing: Cat Stevens – Where Do The Children Play?
via FoxyTunes

So, we have a new therapist… Let’s call her Allison.  We’ve had two therapeutic sessions with her, and one introductory session to see if there was a possibility that we could work together.  I’ve been studiously avoiding talking about her here, I think because I’m scared of jinxing the relationship.  Here’s a quick run-down of what’s happened so far…

Introductory session
We were switching like crazy, a revolving door of different ones checking her out and asking different things that we knew had been issues in the past.

M asked about what happens to her clients when she goes away – this I know is because we tend to (for want of a better term) “fall apart” over Christmas.  One previous therapist asked us to contact her if this should happen, and another had no provisions in place for a crisis over this time.  I don’t think either approach is helpful for us, as we feel like an imposition contacting a therapist out of hours – especially during their Christmas holidays; and the lack of support led to a downward spiral that ended up with us going into respite care.  Allison assured us that, if we wanted, she has another therapist who will see her clients while she is on holiday.

W asked about religion.  This is a huge issue for her, as she sees herself as inherently evil and gets very triggered by the concept of religion.  Allison was open about believing in living a spiritual life.  While this did raise flags for W, it wasn’t a show stopper.  What was interesting, is that Allison mentioned that those who are brought up within a strict religious environment, often exhibit significant signs of abuse.  This was mentioned in the context of my father, who was raised within a strict religious doctrine.  So, it was about putting life experiences into context, not meant as a comparison or justification.

The other big question was, “are you going to cope with us?”  There are huge trust issues with therapists.  I can honestly say that each of the therapists I’ve seen in the past have tried to help us, and wanted to see us live a full life, free of many of the debilitating symptoms we currently experience.  But for various reasons – their approach to DID, a lack of skills, or being out of their depth, it hasn’t worked out.  After the rupture from Liz, all the feelings of being too difficult, too much and being a trouble maker came up again.  Allison mentioned that she was one of the top therapists in our small city.  This rankled M a little, as she saw it as boasting.  But, I understand that Allison was trying to reassure us.

So, after much internal discussion, it was decided that we’d keep seeing Allison.

First session
This was mainly taken up with housekeeping type of information – brief talk about what symptoms we wanted to address first, what other support systems we have, and how we are coping.  It was a difficult session, where at one point, W was nearly sucked into a flashback.  What was interesting, was Allison’s reaction to the near flashback… she asked us to look at her in the face.  Now, we don’t look therapists in the face – yes, this may be considered rude by some people, but we can’t bring ourselves to raise our eyes above their boots.  During work, we can do eye contact no problem, so it’s just within the therapeutic relationship.  Allison kept on about us looking her in the face – to prove that our reaction to the near flashback didn’t upset her, or cause her any distress.  We had to switch to M in order for this to happen, but we managed it!  And yes, it did help.  She sat there very calmly and greeted M as if everything was fine.  Hmmm… so maybe she can cope with minor crazy… let’s see about major crazy…

At this session, we discussed having fortnightly sessions, due to monetary constraints.  Since then, we’ve realised that the crazy making between sessions is too much for us to cope with, so have gone back to weekly sessions.  Who needs money for food anyway :)

Second session
This was a really difficult session.  It came off the back of Mother’s Day (those of you with the password to the protected posts will see the two word feeling that some of us have towards the day), and our up-coming birthday.  It was predominantly Sophie and B throughout the session, until Mother’s Day came up.  Then woohoo… lets step on the crazy freight train.  The desire to self injure went through the roof… Allison was particularly interested in the ways the self-injury was manifesting and who was potentially holding the needs and desires to hurt.  She talked about the anger we hold as pertaining to the mother… and then “flick”, Aimee came forward.

Suddenly it was all bright and breezy, talking about the calender on the wall that hadn’t been flipped over for the new month, the old heater that was in the corner of the room and other diversionary tactics.  Allison welcomed Aimee, which was a huge relief (her type of diversion had been discouraged with some therapists).  They were chatting along nicely, until Allison, as part of the normal conversation, said the word “shadows”.  This meant an immediate hiding by Aimee… she is absolutely terrified by shadows.  Shadows within our internal house represent evil, danger and the angry ones.  So Allison’s innocent comment caused a trigger switch to a stuttering teen.  We hate it when we stutter.  It’s usually only in therapy, and it’s just awful.  Of course, the more we try not to, the worse it gets.  The stutterer explained what had happened, and assured Allison that in no way was she to blame – she had no idea that such an innocent word could have such devastating effects.

Overall, we’re not sure about Allison.  She is good with the silences… both allowing the silence, and bringing our attention to what is happening during the silence.  She’s good at slowing us down, and getting us to try and notice things.  But, we still think we’ll be too much for her.  This is not because we’re the “worst” case of DID or anything, it’s just a mix of the old messages from the childhood, being re-enforced by actions of therapists who were out of their depth.

So, we’re still fence sitting.  She has shown the most promise of the therapists we’ve seen so far…  But, it’s hard to judge things accurately because we are so dissociated from life.

If anyone has had the “joy” of a comment from us over the last week or so, it’s probably been bordering on rude, pompous or left field.  We really shouldn’t comment when we’re so dissociated.  We again had a comment not published on a therapists site, this time because of our side-ways hostility.  That’s a classic sign that we’re not communicating internally, and M is running parts of the show without input from the calming influences of B and Sophie.  I’m not sure what will get us back on track…

Ok… so, the big stuff… the stuff I’ve been studiously avoiding for the last probably two to three weeks… maybe even that last couple of months.  I can’t analyse or reflect on them yet, but I need to write them down so that they lessen their hold over me.

Probably the most obvious, is the therapeutic rupture with Liz.  It destabilised me.  It re-enforced all the old messages about me being too difficult to cope with, and made me feel as if I would never heal.  I still don’t think that the new therapist will cope…  She says she’s one of the top therapists in the small city where we live; but then, Bob was one of the top clinical psychologists, and that didn’t turn out well.  We’re still not sure if ACC will fund us to see her; so until funding is established, we’re seeing her fortnightly.  I know that isn’t often enough, but we can’t afford weekly therapy.

Once you get past the obvious of therapy, there’s the other given… work.  We recently had a change to our union negotiated employment agreement.  The new agreement meant that we ended up with a negative sick leave balance.  We’d used up so much sick leave in the short time we’ve been there, that we’d used the equivalent of an extra years allowance.  This basically meant that we were going to have to go for over a year, with any sick leave being unpaid.  There’s no way we could afford that.  Our union is incredibly weak and unable to fight for the rights of the worker – if you wonder why I’m in such a weak union, librarians are traditionally left wing, socialists who believe in unions, and so there’s a great deal of pressure to join.

So, ignoring the union, we researched the law and questioned work on the validity of the negative balance, when according the the Holidays Act, each employee must have five days paid sick leave per year.  We sent through an email outlining the law, and asking what that meant in regards to our negative balance.  This resulted in a meeting with HR (hence the entry about the panic attack).  The meeting was mercifully quick and resulted in HR apologising to me for any distress caused.  They also gave me five sick days immediately, and another five in six months time.

We had been expecting a written warning about our excessive sick leave.  During the negotiations, our employer had been talking about “sick leave abusers”.  When we saw that negative balance, we immediately knew that we were one of the people being targeted.  We doubted all of the work we’ve been doing.  We don’t feel as if we’ve been performing to an even half descent standard lately.  So again, all our fears and inadequacies were thrown into the spot light.

The other obvious stress has been the divorce.  We got the papers served on the ex-husband, and immediately started to get hang up phone calls.  They were at odds times of the day and lasted for a week, ending only when we picked up the phone once and asked who was there.  This led to all sorts of flashbacks and activation of parts who used to deal with the ex-husband.

Which probably leads into the other issue I’ve been facing… increasing amounts and severity of self injury.  It’s been a really tough few weeks, lots of lost time and negative coping mechanisms being used.  I know I’m going to have to tell the new therapist about this, but it’s so shame inducing that I don’t know how.  I keep thinking that I should be “strong enough” or “healed enough” not to do those old coping mechanisms… but yet fall back into them when the going gets really bad.

Then there’s the last big thing which feels so awful and… just yuck.  I’m friends with the younger of my two brothers on FaceBook.  A few months ago, a photo was added to his profile.  It’s not an awful photo, it’s actually a really good one, which shows his body language as I remember it.  The thing that sends the system into chaos however, is that the lower half of his face is almost exactly the same as the fathers.  The mouth is the same… as is the chin.  It drives some in the system crazy.  My brother is now the age that the father would have been when we were in our early teens.  As I write this, I feel the dissociation coming.  I know this is a huge trigger.  I know that sometimes one of us looks at this photo of our brother as a punishment.

Far out… that’s all I can write… sorry, I know this doesn’t make much sense.  But I needed to get it out in some way.

In all the craziness, I’m reminded of the lines from Hymn to Her…

She will always carry on
Something is lost
But something is found

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Now playing: The Pretenders – Hymn To Her
via FoxyTunes

It always starts out small… or seemingly so.  That one last trigger that pushes you over the edge… some threat to safety… the hint of a flashback… a confrontation at work…

Then…

The heart starts to race… you feel it pounding and hear the blood rushing in your head.  Breathing feels impossible… like you’re breathing through a straw… but, it doesn’t matter anyway, because you don’t have any lungs… your breath goes no where, it’s just an activity for your mouth to do out of habit. You put your hand on your stomach to try and force yourself to actively breathe deeply… but your stomach muscles move purely on reflex.

Fuzziness hits… lips tingle… then the rest of your face.  Palms sweaty and no longer associated with your body.  Legs disconnected and unable to move.

And the noise…

Screaming internally… strong voices trying to cut through the chatter.  All to no avail.  It’s lost in the torrent of chatter and screaming.

You feel the dissociation pull… but it doesn’t happen soon enough.  A door has opened into the hell inside your head and there’s no going back.  No longer adult… now a seething mass of voices screaming out in pain.

Just stop the heart… don’t slow it down, stop it.  Anything for relief…

The tightness travels across your chest into your arms… the clinical side of you wonders if this is a heart attack.

Head swimming and mushy now… the screaming echoing around.

But always, hypervigilant of what’s going on around you… you back slowly to a wall… scanning the room for any threat.  Trying to contain the crazy and appear normal… please don’t let anyone notice…

Noise jars you into a startle response…

Your movements become stilted… every muscle aches from tension.  Your body is ready to sprint for safety, but it doesn’t know which way to go.

Time warps… seeming to slow down, yet race at the same time… it feels as if this moment will never end.

Then, mercifully… you feel the Earth tilt… yes… blissful oblivion.

Blackness of dissociation… feeling the rush of the protectors coming forward… slowly the noise fades away.

Sleep… blissful sleep.  Only to wake an hour later as if coming out of a cotton wool cocoon… your voice is a little louder than usual.  But that’s understandable, because you feel as if you’re looking out at the world from about 5 paces behind your eyes.

The noise from the outside world echoes around in your head…

Nothing seems real.  Derealisation settles in… your hands belong to someone else, colours seem brighter and everything is disjointed.

Drugs… too late for the panic attack, but it might help with the derealisation.  A fear that the protectors took some during the dissociation… you start to second guess yourself.  But you can’t go on like this, so risk the drugs anyway.

Covert looks around… no one sees you popping the pills.  Just breathe…

Finally you feel that rush of air go into your lungs… the big ball of tightness at the top of your chest slowly eases…

Slowly, the automatic actions ease and control returns.

But there’s still that nagging fear… it will be worse next time… someone will see next time… you can’t do that again…

Internally the chaos is stamped back down… layers of dissociation bury the screaming… different ones are returned to their cells… locked away and ignored…

Until next time…

—————-
Now playing: Natalie Merchant – My Skin
via FoxyTunes

Over at Polyvore the group Adult Survivors of Abuse are running a friendly competition to come up with the sets which represent to you “How does it feel” to dissociate.  This isn’t an easy question to answer, as it can depend on the trigger, type of dissociation and the severity of the dissociation.  As an example, I can sometimes tell I’m about to dissociate as I get a tingling at the back of my head and neck, or the world tilts and it feels like I’m falling into a black hole… other times, the dissociation is so quick that I don’t notice anything until I come back an hour (or more) later.  When I discussed my dissociation with the first therapist that I saw, we talked about it being like a train that is speeding out of control…  it’s hard to know how to slow the train down, or whether you’re trying to get on or off it.  This was before I knew many of the grounding and distraction techniques I now know, but the dissociation still feels like an out of control train…  Hence the reason for my entry into the competition -

But the feeling of dissociation is more than that… it’s also about contradictions existing at once.  Over the past month or so, we’ve noticed our food issues coming back.  We’ve never been diagnosed with an eating disorder, and most of our food issues are generally hidden.  One therapist described our food issues as being tied to a sense of entitlement regarding our health. I’m not sure if she’s right or not, but our dissociation means that we can perceive our body as being different ages, shapes and sex.  With the return of the food issues, there is an internal battle raging between those who see themselves at either end of the weight spectrum…

One day I know I’m going to have to work on the food issues. I have raised it with several therapists, but they never seem to consider it a problem worthy of attention. I think this time the food issues are going to be a rough trip, the battle lines are firmly entrenched and there is serious retribution for any action which is perceived as going over those boundaries.

But probably the most consistent issue I have experiencing dissociation is the noise. There seems to rarely be a lull in the constant level of background chatter… I’m not sure how different this is from the usual level of internal noise that non-dissociatives experience, but it can at times be overwhelming, scary and confusing.

This is what happened to me last week with the “rupture” in the therapeutic relationship with Liz. It’s also the reason why I’m often left incapable of speech while in therapy. The conflicting messages and noise are so intense that it’s impossible to work through what the real message is that needs to be discussed.  This had become more of a problem during my sessions with Liz… it could be seen as progress, but so much of the noise was negative that I’m not really sure what it meant.  The noise has died down over the last day or so – except the noise related to the body’s weight, and I think this is tied to everything going back on “lock-down”…

Last week we saw the Mental Health Team psychiatrist and she asked that we write a letter to Liz outlining our concerns and reasoning behind our departure.  We did that, but haven’t heard a response…  The psychiatrist said that they will offer support for a one month period, and by the end of that time we have to have found another therapist… or gone back to Liz.  This has given us a deadline for either having ourselves sorted out to the point of everything being behind the dissociative walls again, or with a therapist.  We’re preparing ourselves for being without a therapist for quite some time…

Flying through space, dissociated from everything
Watching all my fellow travellers trying to touch ground
But there is no ground in this strange land, just clouds
These clouds provide no sanctuary
They encourage you to fly higher and higher
Soaring higher into the bright blue sky

The colours are bright here in this cloud filled world
Blues are bluer
Greens are greener
Blood is redder
Smells are more intense too
Cigarette smoke burns your nose and lungs
Musty worn seats fill your senses

Memories fill the clouds
Clouds of pain
Clouds of scorn
Clouds of tears
Clouds of events you want to forget
Each touches you as you float by
Trying to grasp onto the cloud, only makes it dissipate before you

The clouds, like you, are lost with nowhere to go